Cystinosis is a rare, inherited, metabolic disease that is characterized by the abnormal accumulation of the amino acid cystine in each cell. The build-up of cystine in the cells slowly and eventually destroys all major organs of the body including the kidneys, liver, eyes, muscles, bone marrow, thyroid and brain. Although medication is available to control some of the symptoms of this insidious disease, Cystinosis remains incurable.
Friday, April 27, 2007
I'm not really sure how much more I can say- its time to get on with life. Its time to go back to the only way we know- happy. We have made a 180 change and had a few really big surprises along the way but life just continues to come full circle. We are still incredibly blessed- we have 3 wonderful children- we laugh- we hug- we communicate- we teach- we learn- we appreciate- we listen- we share- and yes, we still cry. But its ok- we're also still the Grier's and we still love it.